After sharing that poem another HKPP patient wrote, I have decided I'd like to also post my own that I just happened to write down on Sunday morning as a prayer to God. It is very free form - I never was good at poetry, but the heart is there. One song that comes to my mind over and over again is "Why Should I Worry." You'll recognize it in the very last line.
Here I am again.
I can't even stand.
In tears because I'm so weak.
I fight for my next breath
And feebly open my eyes.
My heart is racing fast as tremors shake my body
And I struggle to even speak.
But you hear the cry of my heart, LORD.
You know I wanted to be there.
It's not news to you that I wish I could do -
Everything. All the time. Faithfully.
Yet, I am so weak.
Funny thing is that's what you seek.
So take my weakness and show your strength.
Help me open my eyes, and dry my tears
Hold my feeble, trembling hand.
Calm my heart and soothe my mind.
As I remember that
When sickness comes, and my body's in pain,
All I have to do is call on Your name.